Our small group is blessed to include Ali, a lovely, energetic girl who is developmentally disabled. She cannot walk without help and she cannot speak with words that we understand. But she smiles often, participates vigorously, and shows us how God makes beauty out of brokenness.
Ali's mother is one of our Sunday School teachers, and one of the ways Ali participated in the pageant was to light candles during one of the readings. Her mother helped her walk up to the Advent wreath. Then, she carefully wrapped Ali's fingers around the acolyte's brass lighter and lifted the flickering end bravely toward the candles. It took some doing, for it was difficult for Ali and her mother to get the lighter wick lined up just so against each candle wick. But as we watched Ali's rapt face glow in the soft light she lit and listened to the Old Testament prophecies and New Testament narratives of Christ's coming, we saw exactly why Christ came: to give light to darkness and to give hope to the weak. Later, while Pastor read of joyful noises and praise for God's good gifts, Ali lifted her voice to share her excitement. Her timing was perfect. She literally made a joyful noise as we heard about all of creation rejoicing in God's greatest gift.
One of my favorite Christmastime readings is Charles Dickens' A Christmas Carol. In the story, Bob Cratchit tells his wife about taking their son, the saintly Tiny Tim, to church. "He told me, coming home," Bob says, "that he hoped the people saw him in the church, because he was a cripple, and it might be pleasant to them to remember upon Christmas Day, who made lame beggars walk, and blind men see."
Parents of disabled children, including Ali's mom and dad, will tell you that their children are not perfect. They know, just as parents of able-bodied children know, that despite glimpses of sweet innocence and selflessness, children act in savage, selfish, sinful ways, ways that belie their angelic appearances. That's one reason why Lutherans baptize babies--we know our months-, days-, or even hours-old children have been infected with the sin of Adam. Their behavior shows this, but their bodies show it, too. Children scrape knees, break limbs, get infections, battle cancer. Some of the scars heal, but none of them disappear forever. And even the most saintly kid can't fix himself. Tiny Tim recognized this. Even at young ages, we see our children marked for death.
Papa and I witnessed this firsthand in our own home this week. Superman developed a low-grade fever a few days after Christmas. I kept him home, snuggled him, gave him lots of 7-Up and regular doses of bubble-gum Tylenol. But he still felt badly, and his body suddenly reacted to its illness by triggering a seizure. We took him to the Emergency Room within ten minutes of his seizure, and he revived, especially when the nurses prepared his hand for an IV. (Oh, the great patience of pediatric nurses!) He spent the night at Sanford Children's in Sioux Falls, at what we call the Castle (it looks like the Cinderella castle at Disney World). And we were relieved when his temperature disappeared after a night and the doctors concluded that Superman is one of about five percent of kids who experience febrile seizures, or seizures causes by a fever. He might have another one, but he might not. It's most likely that he will grow out of them. And we are very thankful that he is well now, asking for candy at every meal, and asking us, "Do you remember when I got to spend the night at the children's doctor?" Yes, Superman. We remember. And we always will.
| In a feeling-apple-eatin'-good moment. |
Few things are as terrifying to parents, I think, than when their children become physically unresponsive. Right after his seizure, Papa scooped up Superman and held him like a baby. Our son was helpless, and so were we. All we could physically do was to rock him and place him in the care of people who know how little bodies work and what they need. The experience with Superman was a mighty, visceral shock to remember that our son is not ours, that we did not make him, and that we cannot keep him well, or even keep him at all. His days on this earth are numbered. And this knowledge can cripple us with fear and anger.
Too often, I think the world manipulates the weakest among us. Many are manipulated because they are small or voiceless. Many are exploited as powerful political or religious examples that we thoughtlessly or knowingly parade in a voyeuristic show of pity to achieve other ends--our own selfish ends. But Christ came as a weak Babe precisely to show us that He loves each little one unto death. Because that's where Ali and Sam and every child, from the red-faced newborn to strongest Olympian to the frailest centenarian, is headed. And the Child gifted with myrrh, the embalming spice and funeral incense, reached for Death and struck it away, for us, forever.
On Christmas Day, we sing joy. We sing, "Joy to the world, the Lord is come." But even more, we sing healing. "He comes to make His blessings flow/ far as the curse is found." In the Christmas season, and for the rest of this year and every year, we need joy. But we also need to know that His blessings flow even into the very crevices of our sinful lives, into every dark and putrid corner, into every broken heart and annihilated hope that we suffer due to our terrible physical and emotional and spiritual frailty and that of those we love. We need to know that He, the mightiest and the greatest, made Himself the smallest and weakest and most nothing of men to save us, the ones who so desperately need Him. As this Christmas season closes, I pray you know and remember that He comes to defeat every curse that haunts and plagues you. He comes as the lowliest to lift you lowly ones up, to hold you like babies, to heal your brokenness. And he comes still to make His blessings flow.
2 comments:
Beautifully written. Just as all of your posts are! Thank you for sharing your incredible words with all of us!
Thanks, Amy! God bless you and yours always!
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